ePapers Repository

Supporting patients to make informed choices in primary care: what works?

Ellins, Jo L and McIver, Shirley A (2009) Supporting patients to make informed choices in primary care: what works? Working Paper. University of Birmingham, Health Services Management Centre, Birmingham.


URL of Published Version: http://www.hsmc.bham.ac.uk/publications/policy-papers/Supporting_patients-PP4-4.pdf


This paper on the provision of patient information notes that current methods have limited reach and effectiveness.The report found that while most patient information is provided in the form of written leaflets or via the internet, around one in five British people do not have basic literacy and struggle to read, and one third of households do not have a home internet connection.The report also notes that older people, ethnic minority communities and those on lower incomes are among the groups who are most likely to have literacy problems and least likely to use the internet.

Type of Work:Monograph (Working Paper)
School/Faculty:Colleges (2008 onwards) > College of Social Sciences
Number of Pages:12
Department:Health Services Management Centre

Ad Hoc Committee on Health Literacy (1999) ‘Health literacy: report of the Council on Scientific Affairs’, Journal of the American Medical
Association, 281 (6): 552-557.

Atkinson, A. et al (2007) The impact assessment of the mental health guide programme: a mental health community development project
within Hackney’s African and Caribbean communities. Available at www.safh.org.uk.

Aujoulat, I., d’Hoore, W. and Deccache, A. (2007) ‘Patient empowerment in theory and practice:polysemy or cacophony?’, Patient Education
and Counseling, 66 (1):13-20.

Baker, R. et al (2007) ‘Interpersonal continuity of care: a cross-sectional survey of primary care patients’ preferences and their experiences’,

British Journal of General practice, 57 (537): 283-90.
Bergsma, L. (2004) ‘Empowerment Education: The Link between Media Literacy and Health Promotion’, American Behavioural Scientist, 48

Bourbeau, J. et al (2004) ‘Self-management and behaviour modification in COPD’, Patient Education and Counseling, 52 (3): 271-277.

Corrigan, P. (2005) Registering choice: how primary care should change to meet patient needs, London: Social Market Foundation.

Coulter, A. and Ellins, J. (2006) Patient focused interventions: A review of the evidence, London: Health Foundation.

Coulter, A. et al (2005) Patients’ experience of choosing where to undergo surgical treatment. Evaluation of the London Patient Choice
Scheme, Oxford: Picker Institute.

Coulter, A. and Ellins, J. (2007) ‘Effectiveness of strategies for informing, educating and empowering patients’, British Medical Journal, 335:

Cullen, R. (2001) ‘Addressing the digital divide’, Online Information Review, 25 (5): 311-20.

Darzi, A. (2007) Our NHS, Our Future: NHS next stage review interim report, London: Department of Health.

Department for Education and Skills (2003) The Skills for Life survey. A national needs and impact survey of literacy, numeracy and ICT
skills, London: DfES.

Department of Health (2004) Better information, better choices, better health. Putting information at the centre of health, London: DH.

Department of Health (2007) Questions to ask: getting the most out of your appointment. Available at http://www.dh.gov.uk/
enPublicationsandstatistics/Publications/Publicatio nsPolicyAndGuidance/DH_079.

Detmer, D. et al (2003) The informed patient: study report, Cambridge: Cambridge University Health.

Dowse, R. and Ehlers, M. (2005) ‘Medicine labels incorporating pictograms: do they influence understanding and adherence?’, Patient
Education and Counseling, 58 (1): 63-70.

Ellins, J. and Coulter, A. (2005) How engaged are people in their healthcare? Findings of a national telephone survey, London: Health

Eysenbach, G. and Kohler, C. (2002) ‘How do consumers search for and appraise health information on the world wide web?’, British
Medical Journal, 324: 573-77.

Eysenbach, G. (2003) ‘The impact of the Internet on cancer outcomes’. CA Cancer Journal for Clinicians, 53 (6): 356-371.

Feste, C. and Anderson, R. (1995) ‘Empowerment: from philosophy to practice’, Patient Education and Counseling, 26: 139-144.

Gaston, C. and Mitchell, G. (2005) ‘Information giving and decision-making in patients with advanced cancer: A systematic review’. Social
Science and Medicine, 61 (10): 2252-64.

Gibson, P. et al (2002) ‘Limited (information only) patient education programs for adults with asthma’, Cochrane Database of Systematic
Reviews, CD001005 (2).

Gustafson, D. et al (2002) ‘CHESS: 10 years of research and development in consumer health informatics for broad populations, including the
underserved’, International Journal of Medical Informatics, 65 (3): 169-177.

Harrington, J. et al (2004) ‘Improving patients’ communication with doctors: a systematic review of intervention studies’. Patient Education
and Counseling, 52 (1): 7-16.

Hibbard, J. et al (2007) ‘Consumer competencies and the use of comparative quality information: it isn’t just about literacy’, Medical Care
Research and Review, 64: 379-394.

Horner, S. et al (2000) ‘Improving readability of patient education materials’, Journal of Community Health Nursing, 17 (1): 15-23.

Houts, P. et al (2006) ‘The role of pictures in improving health communication: a review of research on attention, comprehension, recall, and adherence’, Patient Education and Counseling, 61 (2): 173-190.

Ipsos MORI (2008) Attitudes to Healthcare in the West Midlands, telephone survey. Unpublished report for NHS West Midlands. London:Ipsos MORI.

Supporting patients to make informed choices in primary care: what works? 11

Ishikawa, H. and Yano, E. (2008) ‘Patient health literacy and participation in the health-care process’, Health Expectations, 11: 113-122.

Jones, R. et al (1999) ‘Randomised trial of personalised computer based information for cancer patients’. British Medical Journal, 319: 1241-

Jones, R. et al (2006) ‘Effect of different forms of information produced for cancer patients on their use of the information, social support,
and anxiety: randomised trial’, British Medical Journal, 332: 942-948.

Jones R. (2008) The role of health kiosks: a rapid review for NHS Choices. Plymouth: University of Plymouth.

Kickbusch, I. et al (2005) Enabling healthy choices in modern health societies. Presentation given to the 8th European Health Forum Badgastein: 5-8 October 2005. Available at http://www.ilonakickbusch.com/health-literacy/Gastein_2005.pdf.

Little, P. et al (2001) ‘Preferences of patients for patient centred approach to consultation in primary care: observational study’, British Medical Journal, 322: 468-474.
Mansoor, L. and Dowse, R. (2003) ‘Effect of pictograms on readability of patient information materials’, Annals of Pharmacotherapy, 37 (7-8):1003-1009.

Maio, G. et al (2007) Tackling Obesities, Foresight Programme, Government Office for Science. Available at www.foresight.gov.uk

Magee, H., Davis L. and Coulter, A. (2003) ‘Public views on healthcare performance indicators and patient choice’, Journal of the Royal Society of Medicine, 96: 338-42.

Marshall, M. et al (2000) ‘The Public Release of Performance Data: What do we expect to gain? A review of the evidence’, Journal of the American Medical Association, 283 (14):1866-1874.

Marshall, M., Hiscock, J. and Sibbald, B. (2002) ‘Attitudes to the public release of comparative information on the quality of general practice
care: a qualitative study’, British Medical Journal, 325: 1278.

Marshall M et al (2003) ‘Public Reporting on Quality in The United States and the United Kingdom’, Health Affairs, 22 (3):134-148.

Marshall, M., Romano, P. and Davies, H. (2004) ‘How do we maximize the impact of the public reporting of quality of care?’, International Journal for Quality in Health Care, 16 (supplement 1): i57-i63.

Marshall, M. and Romano, P. (2005) ‘Impact of reporting hospital performance’, Quality and Safety in Health Care, 14 (2): 77-78.

Marshal, M. et al (2006) ‘Development of an information source for patient and the public about general practice services: an action research study’, Health Expectations, 9: 265-274.

Michie, S. et al (2008) Low-income Groups and Behaviour Change Interventions: A review of intervention content and effectiveness, London:
King’s Fund.

Munro, S. et al (2007) ‘A review of health behaviour theories: how useful are these for developing interventions to promote long-term
medication adherence for TB and HIV/AIDS?’, BMC Public Health, 7: 104.

Nicholas, D. et al (2001) ‘Health information: an evaluation of the use of touch screen kiosks in two hospitals’, Health Information and
Libraries Journal, 18: 213-219.

Nicholas, D. et al (2002) First steps towards providing the nation with health care information and advice via their television sets: summary
report. London: City University.

Nicholas, D. et al (2003) ‘Delivering consumer health information digitally: a comparison between the web and Touchscreen kiosk’, Journal of
Medical Systems, 27 (1): 13-34.

Nicholas, D. et al (2004) A summary report of the research project: The web, the kiosk, digital TV and the changing face of consumer health
information provision: a national impact study, London: City University.

O’Connor, A. et al (2003) ‘Decision aids for people facing health treatment or screening decisions’, Cochrane Database of Systematic
Reviews, CD001431 (2).

Office for National Statistics (2008) Internet access 2008: households and individuals. Available at http://www.statistics.gov.uk/pdfdir/

Pereira, A. and Pearson, S. (2007) ‘Patient attitudes towards continuity of care’, Archives of Internal Medicine, 168 (8): 909-912.

Powell, J. et al (2003) ‘The doctor, the patient and the world-wide web: how the internet is changing healthcare’, Journal of the Royal Society of Medicine, 96 (2): 74-76.

Roter, D., Stashefsky-Margalit, R. and Rudd, R. (2001) ‘Current perspectives on patient education in the US’, Patient Education and
Counseling, 44: 79-86.

Santo, A. et al (2005) ‘Exploring the value of audiotapes for health literacy: a systematic review’. Patient Education and Counseling, 58 (3):

Date:May 2009
Series/Collection Name:HSMC Policy Papers
Keywords:Access to information, Consumer health information, dissemination of information, Effectiveness, Health inequalities, Patient choice
Subjects:H Social Sciences > HV Social pathology. Social and public welfare
ID Code:747

Export Reference As : ASCII + BibTeX + Dublin Core + EndNote + HTML + METS + MODS + OpenURL Object + Reference Manager + Refer + RefWorks
Share this item :
QR Code for this page

Repository Staff Only: item control page